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Wednesday, June 6, 2012

Family photos: Hospital tour (part two)

Friends, I’m excited to continue our hospital tour today. Another of my hospital hot spots: the Intensive Care Unit. When I was 10, I had surgery to correct scoliosis. The surgery itself lasted some 12 hours (yikes!), and when I woke up, I found myself in ICU, hooked up to a ventilator. Fun side fact: I’m probably the only person you’ll ever meet who is obsessed with their Pulse Ox…have you ever had yours taken? You know, when they put that little clip thing on your finger and it registers your breathing function. Not to brag or anything, but mine has always been in the upper ’90s.

Anyway, when I was sprung free from ICU and living it up on 3 West, one of my favorite places to escape to was the basement. Of all places in the hospital, the basement has remain virtually unchanged since I last roamed its halls 15 years ago. Everything was the same (well, except for the fact that there is now a McDonald’s, but I’m not bitter, I promise…). I remember making trips down to the cafeteria to get an ice-cold lemonade. And at the end of the long hallway was a tunnel my father and I would always walk through and pretend we were in some action movie.

And down this hallway? Physical therapy. Oh, physical therapy, how my childhood self hated you so. I took my first steps there, and according to my mother, those small steps came at the end of a long, tear-filled journey on my part. But, I know I wouldn’t be where I am today if those physical therapists hadn’t pushed me as hard as they did.

When I wasn’t in physical therapy, my mom and I would take the elevator all the way to the top floor of the hospital — the ninth floor — and take a peek out of the huge window at the end of the hallway. It looked out over the city, and at night, the view was particularly peaceful and tranquil — the city lights twinkled and all was quiet.

That’s sort of how I feel about the hospital overall — a series of quiet family moment interspersed with the hustle and bustle of all those medical tests and procedures. We were together, and while it wasn’t the same as being together, say, on a family vacation to Disney World, we were together nonetheless. So maybe my father’s spirit is roaming those halls today, watching over other families and thinking about his own. I asked my mom to share her thoughts on the day, and of course she did…

Melissa asked me to share my feelings about our trip last Saturday to visit Children’s Memorial Hospital before it closes this weekend. When I first heard it was closing, I felt a stirring in my heart. The hospital has so many memories for us…from Melissa’s first surgery at 10 weeks of age, all the way until her last time there at 16. If I had known all the experiences we would have had there, I would have kept a journal along the way! To me, Children’s represents the best of times and the worst of times, as Tolstoy said. There were plenty of scary times, tears and heartbreak there. I remember each one as though it were yesterday. All the times that we didn’t know if Melissa would survive the surgeries or the numerous infections. The time we were there for 31 days. The times when my heart would break for her. The elevator doors where I would have to say goodbye to Janelle as the tears ran down her face. But then, there were the best of times too. Times when our family was together, with no responsibilities except to be with one another. The times when it was late at night and feelings were shared freely. All the visits to Chicago locations to pass the time. All of the wonderful people we met there. The sense of relief when Melissa pulled through with flying colors. And, of course, the joy of going home, all together, once again. I just know that a bit of Brian’s spirit still lingers in the halls of that place. I feel so fortunate that we were able to go down and say goodbye to something that had such an impact on our lives. Here’s to you, Children’s Memorial!

Thank you indeed, Children’s Memorial. We’ll always keep those memories close to our hearts! xoxo

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3 Comments Filed Under: childhood week, Children's Memorial Hospital, children's memorial hospital tour, disabilities in the media, Disability, family, family photos, hospital tour, hospital tour photos, hospitals, Uncategorized

Tuesday, June 5, 2012

Family photos: Hospital tour (part one)

As I mentioned yesterday, friends, Children’s Memorial Hospital is moving to its new location in just a few days. It’s the hospital where I had my first surgery at just 10 weeks old. It’s the hospital where I took my first steps in physical therapy when I was four years old (though according to my mother, those first steps were met with pain and some shrill screams on my part…). It’s the hospital where I spent my formative years. So when I had the chance to visit last weekend, I was more than ready to take a walk down memory lane. I hadn’t walked (or should I say wheeled…) those halls in some 15 years. Would things be as I remembered them? Or had things changed, just as I’d changed? I was about to find out…

The hospital is nestled in Chicago’s Lincoln Park neighborhood, where tall, brick apartments and green trees line the streets. We couldn’t believe how much the neighborhood had changed — new shops and new restaurants — but in a strange way, everything still looked the same. Some of the old restaurants we used to go to were still there!

Apparently, when I was really young, according to my mother, the second the looming hospital came into view outside the car window, I’d begin to cry. I knew what was coming, and I didn’t like it one bit. But seeing it now didn’t seem nearly as fear-inducing — or tear-inducing, for that matter. Sure, it helped knowing that I wasn’t going to be poked and prodded once I stepped through those doors helped a bit, but that dread that was all too familiar at one time? It seemed to be replaced by nostalgia. I must have walked in and out of those doors thousands of times, on my way to doctors’ appointments and on my way home from my latest surgery. The doors, I realized became the metaphorical boundary line between my normal life outside the hospital and my medical life inside the hospital’s hallowed halls.
There’s something just so utterly amazing about sense memory, isn’t there? It’s one of those things that can kick in when you least expect it. By the time we’d made our way to the lobby, it all began to sink in. The smells of my childhood. I didn’t remember just how much I’d forgotten that smell — such a powerful sense, isn’t it? And although the lobby had been remodeled since my days, it still felt the same. There was the cluster of chairs where we used to sit when my mom would get it in her head that I needed to get out of my room and go on a walk. And there were the same cluster of elevators that would take us up to…

My home away from home: 3 West. I spent many days there recovering from surgeries. My longest stint? 31 days when I developed a bacterial infection; I actually spent my 11th birthday in the hospital that year. My mother never let me stay in bed for long, though, and before I knew it, she was pushing me around in a banana cart (have you heard of those? They’re actually shaped like a banana…). I’d marvel at the flurry of activity as doctors, nurses and patients scurried up and down the halls. Or, if my dad was taking me around, I listen as he told story after story to take my mind off things. Just like the lobby, 3 West looked different (it used to be bright yellow, for one thing), but my mom could still point out the exact room I was in the most. Have I ever told you about my love of a good, comfy hospital bed, friends?

Hope you like these photos. Look for part two tomorrow, where I’ll share stories of my times in ICU, my early fears of physical therapy, the most calming spot in the hospital and a surprise appearance by someone special… xoxo

[Photos taken by my mom, who also captured my 30th birthday bash]

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7 Comments Filed Under: childhood week, Children's Memorial Hospital, children's memorial hospital tour, disabilities in the media, Disability, family, family photos, hospital tour, hospital tour photos, hospitals, Uncategorized

Monday, June 4, 2012

Sneak peek: Hospital tour photos

If you follow me on Twitter, you know that I had a memory-filled weekend. Chicago’s Children’s Memorial Hospital will be moving to its new location on June 9. On Saturday, I had the opportunity to take a look around the hospital one last time before it closes its doors. Having had more than 26 surgeries by the time I was 16, it was bittersweet to walk those halls again and have those memories come flooding back. But I’m so excited to share my story and photos from the tour with you, friends. I’ll be posting them tomorrow and Wednesday, but in the meantime, here’s a photo I snapped as we pulled up to the hospital…

Were you ever in the hospital as a child, friends? What memories do you have? xoxo

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5 Comments Filed Under: Children's Memorial Hospital, children's memorial hospital tour, disabilities in the media, Disability, family, family photos, hospital tour, hospital tour photos, hospitals, Uncategorized

So About What I Said is a daily blog that covers relationships, disabilities, lifestyle and pop culture. I love to laugh and have been known to overshare. I also have an unabashed obsession with pop music, polo shirts, and PEZ dispensers. Read more...

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