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Wednesday, June 3, 2020

My Essay on Rooted In Rights: “Facebook Avatars Are Fun…But They’re Definitely Not Disability-Inclusive”

Facebook AvatarsRemember two weeks ago when everyone was posting their Facebook avatars?? When I saw friend after friend sharing their adorable, hip selves in cartoon form, I was naturally curious to see what all the fun and fuss was about. So, I clicked a few buttons, chose a few facial and fashion features and…voila!

The result? My avatar looked nothing like me. For my third piece for Rooted In Rights, I wrote about how the cute avatars fail when it comes to disability inclusion.

Sure, I had the polo shirt and Big Hair Energy, but it was incredibly disappointing to find out that there wasn’t a way to show my disability, though. My wheelchair is a huge part of who I am. In fact, there weren’t any assistive devices, which is pretty ableist and not at all inclusive.

Here’s an excerpt of the piece, in which I make the case for the importance of inclusion and how disability representation matters, even in Facebook avatar form…

Disabled people deserve to be represented just like everyone else. All too often, disability inclusion is an after-thought – things become more inclusive only after disabled people speak up and demand change. It would be great to live in a world where this inclusion is part of the plan from the very beginning.

Facebook Avatars may seem like a small thing, but making them more inclusive will show people with disabilities in a better, more accurate way. We’ve got places to go and things to do and our walkers, canes, and wheelchairs help us get there. Those devices deserve just as much prominence as our hair color or eye color.

I’d wanted to create the best version of myself with my avatar, but as it turns out, that was impossible. Without my wheelchair or any representation of my disability, that redheaded, polo shirt-wearing woman just wasn’t me at all.

Facebook AvatarsAND…thanks to the talents of someone on Twitter, my wheelchair is now included in my Facebook avatar!!! Isn’t it perfect?? I took one look at it and immediately exclaimed, “YESSSSSS, this is me!!!”

You can read the full piece here and I’d love to hear your thoughts. Feel free to email me anytime at mellow1422@aol.com and let’s chat! And of course, feel free to share my essay on Facebook, Twitter or even your local refrigerator. If you share on Twitter, be sure to tag me @melissablake so we can connect! I can’t wait to hear from you! Love you all… xoxo

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Leave a Comment Filed Under: disabilities in the media, Disability, Rooted In Rights writing

Monday, July 1, 2019

My Essay on Rooted In Rights: “Here’s What Dr. Phil Got Wrong in His Episode on Interabled Relationships”

interabled relationshipsIn March, you may have seen me post this on social media: Spent a good portion of today thinking about the Dr. Phil episode featuring an interabled couple and more ableist tropes than should be in 2019. It’s irresponsible to present this narrative of disability. People with disabilities aren’t burdens. We’re human. When I posted about Dr. Phil’s ableist views on interabled relationships, I’m sure many of you knew an op-ed would be coming!! Here it is!! And it’s my first for Rooted In Rights — remember my second piece on Ali Stroker’s historic Tony nomination?

I love that my job allows me to be a voice for the disability community. To speak up for a group whose voices and needs are continually overlooked and dismissed. I may only be one voice, but I’ll never stop speaking up and being an advocate for people with disabilities. Always. And when it comes to interabled relationships, this is especially true!

Here’s an excerpt of the piece, in which I write honestly about what it’s like to have a disability and the kinds of care we require…

And here’s something important that Dr. Phil seems to forget: There are different types of “caregiving.” It’s not just about the physical. I may require a lot of personal care from my family, but that doesn’t mean I can’t care for them as well, especially when it comes to emotional caregiving. The episode is a perfect illustration of the sort of ableism people with disabilities encounter on a daily basis. People are surprised when I tell them some of the things people have told me and sometimes, I wonder what’s worse: Their surprise or the fact that I’m not surprised by any of it.

Why are we still buying into the “burden” narrative when it comes to people with disabilities? People with disabilities are not burdens. We’re human. And we deserve to be treated with dignity.

interabled relationshipsYou can read the full piece here and I’d love to hear your thoughts. Feel free to email me anytime at mellow1422@aol.com and let’s chat! And of course, feel free to share my essay on Facebook, Twitter or even your local refrigerator. If you share on Twitter, be sure to tag me @melissablake so we can connect! I can’t wait to hear from you! Love you all… xoxo

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Friday, June 14, 2019

My Essay on Rooted In Rights: “Ali Stroker’s Tony Nomination Puts Disability Center Stage”

Ali StrokerI can’t believe I got to write this as my second piece for Rooted In Rights, an amazing disability rights site! When I heard that actress Ali Stroker recently became the first performer in a wheelchair to be nominated for a Tony award, I was excited (note: I wrote a follow-up piece after her big win last week and will post that next week!). When I heard that they didn’t tone down her character (amorous Ado Annie in Oklahoma!), I was ecstatic.

To see an overtly sexual character with a disability is huge, especially in a society that typically sends the message that women with disabilities are asexual beings. Honestly, that’s something I’ve never understood and it’s actually incredibly frustrating. Why does our disability suddenly take away our sexuality as women? Is it because there’s this societal perception that disability is ugly, grotesque and shameful? I’m definitely not here for any of that!

Thanks to Ali Stroker, though, disability representation is taking center stage. Literally!! To see disabilities represented on the stage has been a long time coming, and it means that yet another barrier has been shattered in the fight for inclusion — a fight in which we still have so far to go!

Here’s an excerpt of the piece, in which I talk about how much I’ve loved Ali Stroker ever since I first saw her on The Glee Project years ago (she should have won!)…

To pair disability with sexuality is nothing short of revolutionary. It’s not something we’ve necessarily seen so overtly on Broadway or quite so mainstream, and it’s sending the very-important message that, yes, women with disabilities can be sexy and can lean into their own sexuality just like nondisabled women. So often, disabilities are thought of as negative – sometimes even repulsive – and they’re virtually never included in mainstream conversations about sexuality. Or even in conversations about relationships in general, for that matter.

The assumption that women with disabilities are asexual beings is all at once hurtful, misguided and damaging. It’s an assumption that further puts us in the “other” category and fails to see us as whole people and all our identities instead of just part of us. And, it’s an assumption that should have been debunked decades ago.

Maybe that’s why I’m so thankful to see Stroker in the spotlight in Oklahoma! as a character who is a woman who embraces her sexuality and just happens to be in a wheelchair.

Ali StrokerYou can read the full piece here and I’d love to hear your thoughts. Feel free to email me anytime at mellow1422@aol.com and let’s chat! And of course, feel free to share my essay on Facebook, Twitter or even your local refrigerator. If you share on Twitter, be sure to tag me @melissablake so we can connect! I can’t wait to hear from you! Love you all… xoxo

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2 Comments Filed Under: disabilities in the media, Disability, Rooted In Rights writing

So About What I Said is a daily blog that covers relationships, disabilities, lifestyle and pop culture. I love to laugh and have been known to overshare. I also have an unabashed obsession with pop music, polo shirts, and PEZ dispensers. Read more...

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